I know it has been quite awhile since I have blogged partly from being busy and partly from being really discouraged. I think only someone who has dealt with chronic illness can understand how I have been feeling over the last four months.
I have taken a break from my family which is really a painful thing to do but it seems I upset them by just being me. My sister and my father have admitted to me that they resent the way my illness had interrupted their lives when I was younger and they no longer want to be inconvenienced by me any longer. As my father so aptly put it was the only relationship he wanted with me is a casual visit once or twice a year. Despite hearing this I did still tried to keep the relationships going untill I found out they were no longer inviting me to birthdays because my work schedule made it to inconvenient for them to include me
I was shocked to hear this confession but what can I do I can’t change the way I am .
My church family was upset with me because they were all into faith healing and they were angry with me because I could not be healed. They started telling me I was full of sin and that’s why I could not be healed not even the pastor would come to see me in the hospital even though he visited others when they were sick. When my doctor prescribed a service dog for me the pastor refused to let me bring her even though there was another person in the church with a service dog.
Since that experience It has been hard to find another church that I feel comfortable in. I still believed in Jesus Christ but I am not so sure about his church . It seems that I am losing faith in my fellow-man but at least I still had my husband who I love and my service dog. I was once an outgoing person who loved God and the church but I have been so ravaged by poor health and unkind people that I have little desire to go back to the outside world and interact with people again. I think what has hurt me the most is how angry people are that I can’t live up to their expectations no matter how hard I try . And to tell you the truth I am sick of trying.
We have finally found another church that is very accepting of my service dog so I will attend and see how it goes. One good thing about having Riley as my service dog is at least when people approach me they focus on the dog and not me which makes conversation a bit easier.
When I was sick the drugs I was on made me gain a ton of weight which really changed the way I looked and I could not believe how badly my fellow church family handled it. Even when I explained to them I was not gaining weight because of what I was eating some people still would not believe it. I even had one person come up to me and say I am praying for you to change your eating habits. I was so embarrassed. I felt so bad about the weight that I stopped looking in mirrors and when I approached people I knew I could actually see the shocked look on their faces so I stopped looking up and just kept my head down when people walked by.
Now when I go out Riley helps me to walk but she also is helping to heal another deeper wound. I had lost all confidence in myself and interacting with others had become hard. Now when I am with Riley people are happy to see her and they smile which makes life a little bit easier for me.
This is a picture of me after finishing off a final round of steroids and it will give you a bit of an idea of how swollen my face was although when this picture was taken a lot of the swelling had already gone down. The red little dots you see under me eyes at the top of my cheeks is blistering rosacea which I developed and still have from coming off the steroids. They are painful little sores that can itch and bleed though the cream they gave me does make it better.
The next picture of me is with Riley near Christmas. Even though I am finished the drugs the weight is very slow in coming down and because walking is so painful and I am having trouble breathing exercise is very hard but with Riley I am trying ! Together we are starting over, a new beginning if you will. One in which I hope to learn to love myself and focus only on pleasing God and not worrying so much about what others think of me. And with God’s help this might lead to a new kind of peace for me and a new way of life.